A First for the Beginning Blogger

I was persuaded, although it didn't take much, by a dear friend of mine (Stephanie Schmidt) to begin a blog to keep track of everything I've been through and everything I'm going through. It's mainly for me, to let out my emotions, especially when I'm at my weakest and to remind myself of the trials and tribulations.  But it is also for my friends and family, to use as an update of how I am, because sometimes I just don't feel like talking to people or there are just too many people to keep in touch with.  I am fortunate to have a large family so that is hard enough updating all my aunts and uncles.  I am even more fortunate to have as many friends as I do, and I try my hardest to call them all but that becomes exhausting after awhile especially when I am ill.

So this is the latest:

-I have a benign tumor on my bladder that the doctor does not want to remove.  If he removes it, it has a high chance of coming back cancerous.  They think I also have Interstitial Cystitis which is a chronic bladder inflammation with no real cure.  So I have a follow up appointment on February 18th, and I have a whole lot of questions.

-I am finally starting to feel a little better from the tortous hell I had to go through with a spinal tap.  I went in to the ER on 1/30/11 due to a severe migraine that I did not know at the time was a migraine.  After the CT scan came back ok, the doc wanted to do a spinal tap to rule out an aneurysm.  The next day I was in extreme pain again and it turned out to be a spinal tap migraine.  So on the following thursday I received an epidural blood patch to fix the problem which in return gave me extreme back pain for a week.  I have a follow up appointment with the neurologist March 16th.

-Now to the main problem, the HEART.  The last ablation helped some, BUT my heart has still raced a few times and I am still on high dosed of anti-arrhythmics so that means there is still a lot of work to be done.  My next appointment is on Valentine's Day and I am 99% sure the doctor is going to suggest we go see the doctors up in Baltimore at John Hopkins since they specialize in ARVD.  So know I am just waiting for time to pass and that is about all. Tick Tock Tick Tock.