ARVD Definitely is Genetic

So my cousin just got a confirmed diagnosis of ARVD as well.  She has two little boys so they soon will be tested.  My cousin and uncle still have to undergo an EP study to see if they have any arrhythmias or whatever else.  My dad who got his defibrillator just less than a year ago, his disease is progressing.  Within just a couple of days he had 7 episodes recorded, one included him experiencing syncope and the other caused him to be shocked for the first time.  He will now be admitted into the hospital to start the anti-arrhythmic Sotalol.  So as my ARVD has reached a stable point, my dads has quickly progressed.  Now we're just waiting for our other family members to finish their testing.  I'm hoping my cousins' little boys of course do not have it, but the likelihood that they do is very high, at least one of them.  My cousin too, will probably need to be getting an ICD after her EP study, because although my uncle, her father, carries the gene but is not affected by it, she has experienced syncope a couple times.  So we are all very anxious to get the rest of the results.

And just a side note, to anyone who has just had an epicardial ablation or is struggling to find the right amount of exercise as to not progress the disease but enough to feel active, I strongly encourage cardiac rehab.  It's just working out under the supervision of nurses with a portable heart monitor to keep a constant check.  It has, more than I expected, greatly reduced my anxiety, which has helped just living day to day.  The Johns Hopkins team suggested I keep my heart rate under 115 but I've been keeping 122 bpm as my max.