Friday, August 24, 2012

New Music

Well as the summer starts to draw toward an end...maybe not so much temperature wise, however.  There have been a number of amazing new album releases from some veteran artists, below are a few of my favorites.  So let me dive right in it.  And towards the bottom there are two new Indie-Folk bands that I have become a fan of...I posted their hit singles below so make sure to check them out!

Andrew Bird:
Album: Break It Yourself

Regina Spektor
Album:  What We Saw from the Cheap Seats


 
Fiona Apple
Album: The Idler Wheel Is Wiser Than the Driver of the Screw 
and Whipping Cords Will Serve You More Than Ropes Will Ever Do









Dispatch
Album: Circle Around the Sun



Slightly Stoopid
Album: Top of the World



Leftover Salmon
Album:  Aquatic Hitchhiker



Passion Pit
Album: Gossamer




*****And there have been two new bands that have emerged on to the scene that have started to gain attention.

Milo Greene
Album: Self-Titled
Bio:  A five member indie-folk ensemble that has great harmonies.  Each member can play various instruments, so they tend to mix it up on stage a good bit.



The Lumineers
Album: Self-Titled
Bio:  Another new indie-folk band with the same amount of people as Milo Greene.  Mainly lead vocals by a guy backed up by a girl and a couple other guys.  Hit single has some similarities to Edward Sharpe and the Magnetic Zeros song "Home".


Friday, July 20, 2012

ARVD Definitely is Genetic


So my cousin just got a confirmed diagnosis of ARVD as well.  She has two little boys so they soon will be tested.  My cousin and uncle still have to undergo an EP study to see if they have any arrhythmias or whatever else.  My dad who got his defibrillator just less than a year ago, his disease is progressing.  Within just a couple of days he had 7 episodes recorded, one included him experiencing syncope and the other caused him to be shocked for the first time.  He will now be admitted into the hospital to start the anti-arrhythmic Sotalol.  So as my ARVD has reached a stable point, my dads has quickly progressed.  Now we're just waiting for our other family members to finish their testing.  I'm hoping my cousins' little boys of course do not have it, but the likelihood that they do is very high, at least one of them.  My cousin too, will probably need to be getting an ICD after her EP study, because although my uncle, her father, carries the gene but is not affected by it, she has experienced syncope a couple times.  So we are all very anxious to get the rest of the results.

And just a side note, to anyone who has just had an epicardial ablation or is struggling to find the right amount of exercise as to not progress the disease but enough to feel active, I strongly encourage cardiac rehab.  It's just working out under the supervision of nurses with a portable heart monitor to keep a constant check.  It has, more than I expected, greatly reduced my anxiety, which has helped just living day to day.  The Johns Hopkins team suggested I keep my heart rate under 115 but I've been keeping 122 bpm as my max.

Thursday, May 24, 2012

An End is Only a Beginning

So after three months of cardiac rehab, including the three weeks I missed, I finally graduated.  I will continue to attend the HeartLife rehab facility as a member, which allows me to work out under the supervision of nurses, although I will no longer wear one of their heart monitors.  However, they will spot check my pulse occasionally.  That is why, after suggestions from the nurses and other ARVD patients, I have purchased my own heart monitor from a sporting goods store.

Most heart monitors in the consumer market are just watches that detect your heart rate while placing two fingers on two sensors of the watch, that responds in a matter of seconds.  But there are a couple watch monitors out there that also come with a chest strap.  The chest strap is capable of constantly monitoring the heart, without the use of finger sensors.  The one I purchased also gives me the option to set a personalized heart rate zone, and will beep anytime I go over my intended maximum heart rate.  I am very thankful for this, because without it, I most definitely would get my heart rate way above what I am allowed, which would then cause more scarring of the ventricles, and there is no reversing that.  So with this monitor, I am able to set my maximum heart rate at 120bpm and be alarmed by the watch when I exceed that, which also helps keeps my anxiety at bay, and makes me feel more comfortable while being active.

The past three months have been very encouraging.  I have made incredible progress, physically and mentally.  When I first started rehab, at the end of February, I was barely able to walk on a treadmill.  Mainly because of my disabling anxiety.  On my first day in rehab, they put me on the treadmill and had me start to walk at 2.5mph.  After 15 minutes they increased it to 2.8mph, and at that point I was too scared to do anymore.  At the time it seemed very fast.  But as the days progressed, and I continued to have no symptoms, my anxiety decreased, enabling me to push myself further.

By the end of it, I was able to do more than my heart was capable of.  Whereas, in the beginning, I wasn't even close to reaching the limits of the disease.  Now, I am able to walk at 3mph at a 7% incline, of course not for very long, because of my heart rate limitations, but still more than I ever thought about when I first entered the program.  Just in the past week, I was able to work out on an erg machine (indoor rower) for about 10 minutes, which I haven't done since 2008.  Like I said, the only limitations I have now are the ones my doctors set to limit the progression of my heart disease.  I am no longer chained and shackled by my anxiety.  I feel comfortable being active, and I now feel comfortable playing 18 holes of disc golf.  That was my goal.  Before rehab, I was unable to get through a couple holes before freaking out a little, now I'll complete 18 holes and want to do another round.  It feels good.

Cardiac Rehab was a huge step in my recovery process.  Without it, I would still be afraid to even walk.  Last September, I visited Glacier and only stayed in the apartment.  Five months later, I was back in Montana, back to being myself again.  I was able to get in a lot of walking without any problems.  Rehab has given me the chance to become more independent, more comfortable with my disease and even more confident in my abilities, and most importantly, given my peace of mind back.  I am very grateful I was given this tremendous opportunity and thankful to all those who have helped in my recovery.